does anyone in the #UK have any resources about #fibromyalgia that aren't unprepared #NHS GPs wanking on about "just exercise"? my girlfriend is #disabled and struggling with excruciating pain every single day and the best we can do is overdose on ibuprofen and cbd because nothing else is available to us
#mutualaid please boost and please do not reply with US-only drugs and only drug names that we can't access without a lucky lottery ticket
@mavica_again @aquinton Duloxetine is what my uncle takes (legal in UK, don’t know what it’s branded there, US it’s cymbalta) and it’s the only thing that’s helped
@mavica_again not great but ask Dr for voltarol emugel and cocodamol 30/500. Is she able to get around? If not maybe look into obtaining a wheelchair, you can rent some, I started with a walking stick, then a rollator, then an electric wheelchair. Wish I hadn't put off getting my chair. Only use to go out and still limited and exhausted when I do but I can actually get it off the house with my chair. Have you looked at the fibromyalgia UK page? And support group?
@mavica_again it sucks but, you learn to live within your energy means, which means some days nothing gets done, others you feel vaguely normal, some you may just sleep through. I know none of this is particularly helpful but hopefully it's held a little. Fibro sucks.
@mavica_again Find a ME/CFS/LC/Fibro private doctor like Dr William Wier, Dr Ballsall or Dr Claire Taylor are the three that immediately come to mind. They have prescribing capabilities and will take the condition seriously unlike a GP or your typical NHS "specialist".
I am not aware of how Fibromylgia pain is handlednmyself since I am #mecfs / #longcovid but its a sister condition so I suspect those 3 doctors can help or find someone else. You don't have much choice but to avoid the NHS.